LETTERS From Sue Kruk, temporary secretary, Cystic Fibrosis Trust, Hayling Island:
THIS year marks the 50th anniversary of the Cystic Fibrosis Trust, a national charity which fights for the lives of 10,000 UK children and adults.
Millions carry the CF gene but both parents must be carriers to produce a baby with CF. This is often a bolt from the blue for families.
Fifty years ago, most children sadly died young. CF life expectancy has improved dramatically for most.
However, every person with CF has a relentless daily regime of treatment as the condition progresses.
These young, much-loved people invariably live life to the full, showing courage and humour.
The trust’s new website, www.cysticfibrosis.org.uk, describes the breadth of its present day work to secure a healthier future for them.
Last year, a young man bravely swam from the mainland to the Island to raise funds for the trust, explaining there was 'very little fundraising for or awareness of CF on the IW’.
This is understandable. In 1964, the IW was part of the Portsmouth branch.
To mark our anniversary, we hope to improve awareness with our new local Facebook page, www.facebook.com/CFPortsmouth so people can get in contact, or post their activities.