Events to highlight disease

By Alan Marriott

Sunday, May 4, 2014

 

Events to highlight disease

Isle of Wight cystic fibrosis sufferer Ceann Chivers.

THE suffering of those affected by the genetic disease cystic fibrosis can often be overlooked.

But two charity events being held in Carisbrooke over the will highlight the condition, which slowly destroys the lungs and digestive system, and hopefully raise funds for Isle of Wight sufferers.

The Waverley pub will be hosting a family fun day, with raffles and auctions, today (Sunday), from 3pm until late, then on Friday, in association with Island Bakeries Cricket Club, there will be a race night, starting at 8pm.

The person behind the events is Christine Fairhurst, whose daughter Ceann Chivers, suffers from the disease.

Christine said 14-year-old Ceann was in St Mary’s Hospital this week after a particularly bad spell and was on antibiotics.

She said it was hard to be a sufferer from cystic fibrosis and hard to be a parent of a sufferer.

She said: "It is very hard to see your child suffering. She has lung problems constantly and recently had a collapsed lung. There are high levels of medication and time-consuming physiotherapy and a high-fat diet that has to be followed."

Chris, who cares for Ceann with her husband, Carl, said the week’s events should support Island sufferers and the general Cystic Fibrosis Trust charity.

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