Plea to help charity’s good work continue

By Martin Neville

Sunday, March 30, 2014

 

Plea to help charity’s good work continue

Colman and Emma Cotter at the launch of Layla’s Trust two years ago.

TO COINCIDE with the anniversary of the launch of Layla’s Trust children’s charity, people on the Isle of Wight are being asked to join in with Layla’s Day next month.

Layla’s Trust was set up two years ago in memory of Layla Mae Cotter, who died in February 2011, aged just 70 days.

She was born with Gaucher Disease Type 2, a rare genetic condition, and spent most of her short life at St Mary’s Hospital.

The trust is helping several Island families in need of financial support, with things like food, travel and accommodation for those who find themselves having to travel to the mainland while their child receives treatment.

Now the charity is hoping as many Island schools, organisations and groups as possible will get involved with a variety of fundraising activities on Monday, April 28 — Layla’s Day — to raise funds to ensure that support can continue.

Emma Cotter, Layla’s mother and trust chairman, said: "We desperately need money to keep our services going.

"At present, we are paying out an average of £10,000 a year in financial aid supporting Island families.

"We hope Layla’s Day will help us keep that vital support going and to develop future projects."

She added: "It’s entirely up to you as to how you decide to fundraise.

"Fundraising ideas could include a mufti day, a sponsored car wash or silence, a coffee morning or cake sale, a sports activity, such as a swim, walk or run, or even a raffle or auction.

"The more unusual or original the idea, the better."

For information, visit the Layla’s Trust website at www.laylas-trust.org or donate to mydonate.bt.com/events/laylasday

Reporter: martinn@iwcpmail.co.uk

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by Frank Fletcher

5th April 2014, at 20:29:36

Stephen,

A recent report by CLIC Sargent found that families whose Children have Cancer

pent £367 and £277 respectively on extra expenses every month as a result of a cancer diagnosis and its treatment. This amounts to an additional annual spend of £4,400 for parents and £3,325 for young people

The number of parents who said that money was ‘often’ or ‘frequently’ a worry increased eight fold after diagnosis, from 8% to 65%

Two in three parents and half of young people built up debt to make ends meet as a result of cancer

More than half of parents surveyed told us that they had to take time off as unpaid leave and one in three took unpaid leave for three months or longer when their child was diagnosed

I am sure that it is similar for families who's Children have other illness.

I have only recently found out about Layla’s Trust and am very impressed with what they are trying to achieve.

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by E Cotter

31st March 2014, at 20:58:40

Whilst families maybe eligible to a discount for the ferry component of their journey in some instances, they have to cover additional transport costs themselves. In addition, all the families that we (Layla's Trust) help are referred to us by the Children's Community Nursing Team and other care professionals - ensuring we are helping legitimate and the most in need families. The level of help you receive for accommodation on the mainland is also down to what condition/illness a child has and in our instance, due to the rare nature of Layla's condition, we received no financial aid from any organisation. If we can help families financially, whilst they are most likely out of work to care/be with their child, then we will continue to fundraise and work to support those families as best we can in the future. If anyone knows of any other aid entitlements which would benefit the families we help, we would be grateful of any information which we can pass on to our families directly.

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by Stephen Elliott

30th March 2014, at 23:21:44

The NHS pays for treatment n travel doesn't it?

Any views or opinions presented in the comments above are solely those of the author and do not represent those of the Isle of Wight County Press.

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