Isle of Wight youngster Sophie Rolf, with her father, Aaron, in the London Eye.
Sophie Rolf’s charity, KissyPuppy, is joining forces with the Earl Mountbatten Hospice to create an Isle of Wight base for children and young people who have life-limiting conditions.
Five-year-old Sophie, from Totland, who is battling an inoperable brain tumour, has become well-known and her condition has highlighted the lack of children’s hospice care on the Island, with families having to travel to Naomi House, in Winchester.
Tina Harris, chief executive of the Earl Mountbatten Hospice, said: "KissyPuppy is raising money for the Earl Mountbatten Hospice to create an interim Island-based solution to support local children and young people with life-limiting conditions.
"The hospice is working in partnership with Sophie’s parents and other interested organisations and families on the Island to research the need and opportunity to develop its services to include children and young people."
She added: "Raising money for Earl Mountbatten Hospice to transform a space into a child-friendly residence on the hospice site, not just for Sophie but for other children and families who may need this service in the future, would bridge the gap while new long-term services are explored."
Sophie’s dad, Aaron, said: "We want something in place, should we need it, and also for other families on the Island.
"I haven’t thought that far ahead into the future but it would also be fantastic to know if we need it, we don’t have to get on a ferry and drive on the other side."
He said the John Cheverton Centre at the hospice was "an amazing building and we were hoping to have something for families to use with their children, just something in the interim period and KissyPuppy wants to help and provide funds towards the project."